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How fast does frontal lobe dementia progress? |
My mother has been diagnosed with Fronatlemporal Dementia since age 60. She is now 65 and is becoming very intrusive to people and childlike. She has trouble with word comprehension and I do all of her billing etc. She still is ambulatory, but doesn't wash clothes properly and her house cleaning skills have diminshed. We aren't sure if we should go the nursing home route yet. What should we expect down the road? Will she be mute or incontinent. It is such a strange disease. I forget what she was like before the illness. Thanks for any input. There are some very good sites on Frontal lobe dementia, NIH (National Institute of Health) is a good resource as is the Alzheimer's Assoc. My Wife and Brother-in-Law both have the same disease, they are now going on their 6th and 4th years. Both are mute and became mute 2 1/2 years after diagnosis, and both are now incontinent. This is typical for FLD. Generally the disease will last on average 6 years but can be 4-12 years. It sounds as if the disease is working rather slowly on your mother. A few things to consider on a nursing home. We visited over 20 homes before finding place for my wife. Make sure they have Alzheimer's Care and visit at different times of day before you make decision....look for residents being active in group activities, facility should be free of urine smells and aids should be available to assist with eating...neither my wife nor brother in law can feed themselves any longer. You will no doubt need a nursing home someday, maybe not yet. Familiarize yourself with estate planning, their are lawyers that can help you, look for an estate or elder care lawyer. They will be able to help you with Medicaid decisions etc.....you need to do this now if you have not yet, she will need to be able to sign her name or acknowledge the paperwork, you don't want to wait too late to do the estate, medicaid, will, power of attorney and medical power of attorney paperwork. when you find out... PLEASE let me know. my mother has been like this since i was about 15 and i'm now 35 and we've never been able to figure things out. she's 65 now. |
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