Cystic fibrosis and pregnancy??

i am 24 weeks pregnant and just found out i am a carrier for cystic fibrosis. i should have been notified this 2 months ago when i took the test, but i wasnt! now the midwive tells me ( you have the rarest form) a form she has never seen before?? my husband is african american so im told this is a good thing as he has a low chance of caring the gene,, were waiting for his test results..but im wondering what form i am carrying and why she looked so confused on the type???? does anyone know the differnet forms or the rarest form of cystic fibrosis?? yes im gonna call them tommarrow belive that to have it out with them why i had toask for my positive results and what form this is exactly, but they are closed now.. so im anxious and curious??? please anyone that knows can i have some advice???

Pregnancy and cystic fibrosis

GJ Canny, M Corey, RA Livingstone, S Carpenter, L Green, and H Levison


Despite reduced fertility, pregnancy is likely to occur with increasing frequency in cystic fibrosis in proportion to the number of patients reaching childbearing age. Thirty-eight pregnancies in 25 patients with cystic fibrosis are presented. Twelve of the 25 mothers were pancreatic-sufficient. Despite previous reports of the hazards of pregnancy in cystic fibrosis, we found that pregnancy was well tolerated by the vast majority of our patients and had little effect on their pulmonary and nutritional status.
The incidence of prematurity and the neonatal mortality rate were low, and no congenital abnormalities occurred. We conclude that pregnancy can be tolerated by the majority of cystic fibrosis patients, particularly those who are pancreatic-sufficient.

Hi mom2be, I see that my friend has already answered another question you asked about being a carrier for cystic fibrosis (SpankyRaven) and I cannot add anything to that. But I wanted to say that yearofthekat did not understand what you were asking, but did a really good job of explaining about pregnancy in women who have cystic fibrosis.

I know what it is like to be given a limited amount of information, and when you go home and look it up, have a complete freak-out. I was told last year that I had this tumor, which I had been told several times was benign, that all of a sudden they wanted to take it out, they thought it was a tumor called GIST. I then went home and looked it up, and found out that it was a rare form of cancer, that chemotherapy and radiation therapy do not work, 9/10 people died within 5 years, and most of them within 10 months. It all turned out well in the end, but I do know what you are feeling, if that is any comfort to you.

I hope you are feeling a bit better.