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Does anyone have cystic fibrosis? |
i just wanna know some people with cystic fibrosis i lost my brother a year and a half ago to CF he was 24 .. how long do people live with CF? I am so so very sorry for your loss. I lost my sister from CF when she was 28. The median ages for survivors with CF right now are 32-37. If you want to get to know people with CF go to www.cysticfibrosis.com . That's what I did and there's tons and tons of people on there to get to know and you can also look up local chapters in your area to get to know people with CF in your area. Bless your heart I know you're hurting and if you ever want someone to talk to who knows what it's like to have lost someone with CF email me ANY time. Good luck. i know i had a friend and her niece had it and she was the sweetest little girl ever....she stayed really sick most of the time but she was the most gentle little girl with a beautiful smile....i think she was about 7 when she died....it was really hard on everyone....this has been quite a few years back and i was hopeful that medicine and knowledge has improved the life expectany of this terrible disease....you have my heartfelt respect to you and your family for the lost of your brother....i hope one day that this disease is a thing of the past.... You cn get help at the Cycstic Fibrosis Foundation. My son has a friend with CF so we donate to the foundation. They can help you. I also believe that they have support groups. I have CF the national average the last time I checked was 36 years old was life expectancy I received a bilateral lung transplant at 27 due to end stage CF that was almost 13 years ago Sorry for your loss! I have a cousin who is 35 years old and does great. She is a nurse and works in the neonatal intensive care unit. She is married and thet have just adopted a little baby. When she was born, the life expectancy was 12 years but praise the Lord it has raised. We credit her longevity mainly to the Lord. Her mother prayed over her everytime she did postural drainage. She always lives life to the fullest and travels, deep sea fishes, goes to mardi gras balls and has even been the queen of the ball a few times. She had full involvement both pancreas and lungs but has never let it stop her. When she was 12 she had a lobe of one of her lungs removed due to scar tissue and of course has spent many a time in the hospital for IV antibiotic therapy. Her mother never missed therapy even when she herself had bursitus in her shoulder. She would do therapy even when it would hurt both of them because she didn't want to ever look back with regret when the end came. She told me that she just put on her "nurses cap" and did it anyway. As a mommy she wanted to give in to make my cousin more comfortable but she knew it was better for her physically to do the therapy, take the breathing treatments and meds. She never treated my cousin as someone who was disabled. My cousin even played a wind instrument in the High School marching band. I respect my cousin so much for traveling this road without pittiyng herself and for the bravery she has shown her whole life and I respect my aunt for raising her with the ability to do just that. I hope that anyone that reads this that has CF or is raising a child with CF can be inspired by their story. My prayers are with you. I'm very sorry to hear of your loss. |
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Either you are misinformed and your doctor is not a very reputabole doctor, or you misunderstood his diagnosis. Cystic Fibrosis is a disease that generally affects the lungs, not the ovaries. I ... My sister has CF, she's 11. Tough thing to have.... hope you are doing all of your treatments...lol ( it seems like we are always on my sisters case about her treatments and enzymes, so I'... Cystic fibrosis (CF) was recognised as specific entity during the Thirties. There is nothing resembling CF described in the 1032 pages of Sir Frederick Still's 1927 Edition of Common Disorders... Yes they sure can. There's a test called the "sweat test" that doctors can test your little one to see if they have Cystic Fibrosis. Some insurance carriers don't carry the co... Stool is usually light colored and very hard to flush. ...okay being the mother of a child with cystic fibrosis(CF) i can tell you. it creates thick mucos in the lungs that is hard to get out. alot of people do breathing treatments to help with clearing t... its causes pulmonary hypertension and right side heart failure,the only treatment is a complete lung -heart transplant,gene therapy hasnt helped by early twennties most die if not transplanted ...In a strictly legal sense, probably not...but by all common sense, it is abusive. Cystic fibrosis is an extremely serious disease that claims lives early...any extra assault on the lungs is surely ... |
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