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Is anyone familiar with Cystic Fibrosis?


If I'm right, some states automatically test newborn babies for Cystic Fibrosis.
Does anyone know if this is true, and if so which states do the testing?

Thank you for any information that you can give me.

my daughter was diagnosed at 2 months old....she wouldnt gain any weight and cried all the time...people with cf have a high salt content in their body and if the doctor suspects cf they put a little patch on the leg and then make the leg sweat and if a high salt content comes back they know....in short, cf attacks the endocrine glands, which controls the mucuous in our body. our lungs have mucous which trap dirt and then we cough it up, but people with cf have a very thick mucous which traps the dirt but is hard to cough up and can cause lung infections,...it also disrupts the digestion system because when we eat food the pancreas sends enzymes to the stomach to digest the food and absorb all the fats and calories and this enzyme travels to the stomach by mucous but cf individuals have such thick mucous that the enzyme gets trapped and doesnt make it to the stomach and then the food never gets absorbed and it just runs right thru us and thats why my baby wasnt gaining any weight or getting that full feeling....once they diagnosed her they started giveing her enzymes pills that go directly to her stomach and then she started gaining weight....she is 10 almost 11 now and youd never know she even had it...we have to watch her closely with colds though, because they can easily turn into a lung infection, but with proper albuterol treatments it usually turns out fine. To answer your question though I dont know if they do it automatically now, they said my baby was a "failure to thrive" and since that is a classic sign of cf in newborns they went ahead and did a test....you could probably request one though, because it only took about 15 min to do the test and is non-invasive.

That is true. Its only a handful of states and I don't know which right off. I know that some also test the mother when the inital prenatal bloodwork is done to see if she is a carrier. If mom isn't a carrier, then there is no way baby will have it. Mom AND Dad have to carry the gene in order for baby to get the disease, and your only a carrier if one of your parents was a carrier so its sort of a genetic thing. If you have direct relatives that have CF, you could be a carrier of the gene. I hope this all helps.

I don't know which states automatically test for CF but it is a very simple test, and on request it can be done and the results are quick. It is a sweat test. If you suspect your child has CF. there is a wide variety of wonderful info out there. They are very close to a cure. Check out the Cystic Fibrosis Foundation. There is a huge clinic at either U.C. San Francisco Hospital or Stanford U.Hospital in California. I don't remember which one, but they are on the cutting edge of research with CF. Good luck.

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