Does any information on the effectiveness of intravenous Prednisone therapy for Crohn's Disease in kids?

My 14-year-old daughter is having a flare-up of her Crohn's Disease. Her G.I. doc is interested in putting her on intravenous Prednisone therapy to get it under control, since the oral dose doen't seem to be doing the trick, at this time. Yuck, for many reasons, including hospitalization for days to weeks, (according to the doc) in a facility far from home. (Yes, I know that can also result from a full-blown flare.) Does anyone have info or personal experience on the effectiveness of I.V. Prednisone therapy? Thanks!

hi Elisabeth, I am a female crohn's pt. dxed at the age of 12.My heart goes out to your daughter. I can understand the pain she is going through plus the questions you may have.

Is she a candidate for Remicade to get things under control or possibly Humira? Most GIs tend to stay away from steroids just because they have life long side effects if some has been on them for years. I was on them for 13 yrs. and weaned off and put on 6MP for a while then Entocort came out (it's a steroid BUT doesn't have any of the bad side effects like prednisone--it doesn't get absorbed into the blood stream at all) and I've been on it ever since.

Have you attended a local Crohn's & Colitis Foundation of America chapter meeting near you? go to the site and click on events/chapters, then click on the state you live in and the info will come up. My parents went to the meetings when I was 1st diagnosed to educate themselves. That helped out alot. CCFA has a live chat as well as a hotline that is run by healthcare professionals well versed in IBD M-F 9 am - 5 pm (EST). Give them a call. They also have meetings that are geared toward kids so they have someone their age to talk to.

I know it's scary, frustrating, and a very emotional time right now. I've been there many times myself. I went through missing alot of school in 11th and 12th grade, being in constant pain 24/7, canceling appts. w/my friends due to not feeling well, etc. Just know that you and your daughter are not alone in the battle.

Feel free to email me if you have questions. I have included some sources for you as well as a site that is for parents with kids who have IBD--dragonpack.

Tags

　　Cystic Fibrosis 　　Cushing Syndrome 　　Cubital Tunnel Syndrome 　　CT Scans 　　Crutches 　　Croup 　　Crohn Disease 　　Cramps 　　Crack 　　CPR 　　Cough 　　Costochondritis 　　Cosmetic Surgery

Related information

What are the best job's for people suffering with Crohn's disease?

hi mark, i've been a crohn's pt. since the age of 12. People with this illness can do almost anything if they are in remission. We are protected by the 1990 Disability Act. The employer...

What is the typical length of a hospital stay when being tested for Crohn's disease?

It depends on the doctor. The hospital cannot do anything without the doctor. The tests themselves are often done on an out patient basis. They maybe trying to regulate his diet in the hospital.

I have a coach driver who wants to start work for me.he has Crohn's Disease,where do i stand with the law.

If he is applying to work he must have everything under control. Most people with crohns have been on meds for a long time and know how to regulate their systems. He should be fine and have no m...

Is anyone on a Remicade Infusion regiment for Crohn's Disease.?

Hey, I am on Remicade infusions every 7-8 weeks since May '05. You can email me

...

Does anyone have an recipes or recommendations for crohn's disease?

I was diagnosed with U.C. (ulcerative colotis) when I was 8, so I know the issues with foods that you may be having. Fast foods almost always made me sick, and I had to eat pizza in moderation, alw...

Can someone tell me if my partner has crohn's disease?

I B S is only diagnosed when they cant find what is causing the trouble,it has no consistent symptoms and if you are prepared to accept that ,also does not progress to worse symptoms Digestive prob...

Does smoking marijuana help ease the pain in crohn's disease?

It helps with alot of pain - that is why they have medical marijuana. It helps aids victims gain weight and take pain away. They also give it to terminal cancer patients. I went to school with a...