CFS/ME Can anyone help?

I have been diagnosed with CFS/ME and the literature I have been given is not clear. Can anyone tell me what happens straight after diagnosis and what the "therapy" will involve?

Any information will be gratefully recieved. Cheers

Hi :)

I generally have found little information and treatment given/offered - it severely depends on where you are located, I think.

I am unsure of your age/location - if under 25 in the UK, AYME is VERY helpful - www.ayme.org.uk - and it's free.

There is foggy friends - www.foggyfriends.org which is for anyone, anywhere and rather friendly - both are great for advice and support.

http://www.ayme.org.uk/article.php?sid=1... has information on various therapies and also symptoms and things, although I guess you don't need to know those so much!

As for letting people know/ explaining, I find ( http://www.butyoudontlooksick.com/2004/1... ) the spoon theory really valuable - it was actually written by somebody with Lupus but applies very well for ME-ers.

Lastly - I wish you well, I have had ME for 15 years now and have improved from very severely affected to moderately affected so know quite a bit. Well I hope I do.

If you want any more information or even to chat or anything at all, you're more than welcome to e-mail/contact me :)

M.E is a serious neurological condition affecting the Central Nervous System. Cause is to be found in inherited (treatable) factors and childhood infections. IAsk to be referred to practitioner who treats these. Stop; tea, coffee, alcohol eat simply. ? exercise. Report It

http://www.cfs-info.com/joomla/

sympathies fellow sufferer. the research to date indicates that CFS/ME is a post viral illness, eg if you were stricken with flu or something similar. because your central nervous system has been hit hard, it can take months or years to recover. because some gp's debate that the condition actually even exists, it took me four years and a million blood tests to get a diagnosis. if you recall, there was a huge write up about yuppie flu a few years back however the condition is actually chronic fatigue syndrome or m e . your gp should refer you to a local m e self help group and put you on a graduated excercise programme to try to build your body up so as you can gain strength. if these options are not offered by your gp i suggest you put it to him. there are also web sites where you can share your experiences with fellow sufferers. my heart goes out to you, i know what a debilitating condition this is and wish you and myself a speedy recovery. x

Lots of conflicting information on your condition. I may have had it after I contacted mono as a teen ager. I had symptons... I just thought I was taking forever to get over mono. My college minor in physical education might have helped more than I ever realized at the time .