Does anybody suffer from ME/CFS?

Do u know anybody who had ME/CFS n now better or any body under treatment now
My GP said "may be you have ME" and its really difficult to cope with
I like to ask other ME sufferer's experienes if they can kindly share
(pls only serious repliers)
Thank you

I have CFS and it, for me Can be debilitating. I also have Antiphospholipid Syndrome, which for me is the cause. I am better some days than others, but I never know how each day will be. I am no longer able to work outside the home, and social events are a wait and see. I have more energy when my blood is properly thinned from anticoagulants, but the least thing can set it off. Avoid stress if you are able. That knocks me out! I have included two links for you.
Best wishes

hi I have had M.E since I was 12. I was diagnosed at 16 and am now 22. I have up and down patches depending on the stress, health and sometimes even the weather!

First thing I did after diagnosis was go on list to see speciliaast...I initially sw an ME specilialist at St James Hospital, now see an Occupational Therapist. you can also be referred to Cognitive Therapy.

There may be support groups nearby so ask your GP, look online etc.
http://www.afme.org.uk/
http://www.ayme.org.uk/
http://www.nhsdirect.nhs.uk/encyclopaedi...
Look up M.E, C.F.S and Post Viral Symdrone as these are usually how its known...

I found my M.e alot easier to handle after seeing Occupational THerapist as I learnt how to handle my own life. Best ting to do is find out as much as you can about M.E, buy books, read on the net etc...knowledge is power! And dont be afriad to change GP's if yours isnt helping!

I have had ME so long now its part of me, I accept it an learnt my boundaries but never be afraid to live life and be who you are! I had to fight for most of my life...so be prepared for a few battles! GOOD LUCK

Tags

　　Chewing Tobacco 　　Chest Pain 　　Chemotherapy 　　Charley Horse 　　Charcot-Marie-Tooth Disease 　　Chagas Disease 　　CFS 　　Cesarean Section 　　Cervical Spine 　　Cervical Cancer 　　Cerebral Palsy 　　Cellulitis 　　Celiac Disease

Related information

Any thing new concerning CFS or Fibromialgia treatment.?

USANA Technical Bulletin Disclaimer: The information provided in this technical bulletin is strictly educational and not intended as medical advice. For diagnosis and treatment of medical disorder...

Did you know about CFS/FIBRO Upright Test?

Thank you for the link. I have been aware that Dr. Paul Cheney has being working on the cardiac output with ME/CFS sufferers for some time. You may like to read the following links. ME/CF...

How do other ME/CFS sufferers manage a part-time job on a day-to-day basis?

Myalgic Encephalomyelitis is fully recognised as an organic-biomedical Neurological Disorder by the World Health Organisation at IDC-10-G93.3.You need to do what is called pacing, that is small am...

Why everytime i say i have cfs /m.e i get abuse ?

is it chronic fatigue syndrome. Just ignore the hate and abuse some people are plain nasty just take it with a pinch of salt and dont take it seriuosly but im sure there it is over shadowed by the ...

Do i have CFS? PLEASE HELP ME?

There's no reason to be scared. Chronic fatigue syndrome is a highly frustrating condition to have, but it's not life threatening and for the most part, doesn't involve any pain. ...

Recently diagnosed with CFS/ME, what is your story?

Hi Adam, I became ill a bit more then two years ago. I felt extremely tired and had all kind of other symptoms, my muscles where very weak, I had shivers in my body, pain in my neck, couldn'...

Ribose and Chronic Fatigue Syndrome (for those with CFS)?

Since nobody has answered yet, I'll toss in my 2 cents. I have had a number of customers tell me that they were taking Ribose for their Chronic Fatigue, and apparently they get a lot of bene...

Getting a CFS Diagnosis?

Hi sorry to hear your not well. It is entirely possible you have CFS, try to see a doctor who specialises in CFS/ME and fibromyalgia. CFS is a rather awful complaint, and can be hard to get a d...