How do other ME/CFS sufferers manage a part-time job on a day-to-day basis?

I have had ME/CFS for a number of years and have been very fortunate because my employers have been very understanding and given me a flexible part-time job. I'm a bit worried because I have been struggling a bit over the last few months. I just hope it is a bad phase and I will get back to my normal attendence again very soon. I really, really don't want to give-up my job. Can anyone in a similar situation advise me on how to cope with a job while having this condition.

Myalgic Encephalomyelitis is fully recognised as an organic-biomedical Neurological Disorder by the World Health Organisation at IDC-10-G93.3.You need to do what is called pacing, that is small amounts of activity followed by rest. If you have problems sleeping ask your consultant for 5mg Melatonin, to which zopiclone can be added if necessary. Diet is essential, lots of fresh fruit and vegetables. Try and get into a routine that suits you and stick to it. Avoid all environmental pollution at home, ie if you must decorate use water based paints. Avoid pollution out doors, I have friends who wear paint sprayers masks to drive.
Get on the Internet and find the Canadian guidelines for treatment and join a support group, eg ME Support, ME Association or the 25% group. Useful reading Dr Charles Shepherd, Living With ME, ISBN 0-7493-1264-5
Web sites:-
www.meactionuk.org.uk
www.theoneclickgroup.co.uk
www.ahummingbirdsguide.com *

*for a lecture by Professor Malcolm Hooper, Emeritous Professoe of Medicinal Chemistry University of Sunderland, UK

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