When I was 9 I was diagnosed with a very severe slip of the capital fenoral epiphysis. I am now 20 and my life has become hell because of it. I went to a forum about a year ago and saw that people said that it got so bad that they had to have an osteotamy(sp?) 6 months after my slip I had a tripple osteotamy. I also developed avascular necrosis.
I haven't met anyone or talked to anyone that's been through the same and I'm just looking for some support. I've been depressed for most of my life and I never thought it could have anything to do with my hip and I'm starting to think it might since I have no one that understands my exact situation. If there is anyone that's been through it and understands even if it's not as severe or if it's worse i would like to know because I really need some support. My email is: dani.coyne@yahoo.com It's also gotten much worse since I was 9. I can't walk more than 15 minutes without using a cane and can only stand for about 5 minutes and sit for an hour. I'm in constant pain and medicine only knocks me out but even then I still feel the pain. The doctors said I should be able to live normally, but I haven't been able to and just because they said that my entire family thinks i'm "milking" it. And my dad because he went to 5 out of the 250 appointments I've been to thinks he knows everything about it and tells me I don't know what I'm talking about. I've sorta kinda lived with it for 11 years I think I know about a lot more than he does when it comes to it. Have you been to an orthopedic physician lately to be re-evaluated? Maybe some new treatments have come up since you last went to the doctors...it might be worth a shot to go and see if it has been awhile...maybe a hip replacement might help??
You could try a biofeedback clinic and see if that would help the pain? Or self-hypnosis tapes? Here is a link to that..
http://www.potentialsunlimited.com/subli...
Here is one link I got when I googled it...there are other links too...
http://familydoctor.org/online/famdocen/...
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Here is information on an anti-inflammatory diet...based upon the idea that proteins, fats and sugars make prostaglandins which create pain, so it is low-fat, low-protein and low-sugar.
Anti-Inflammatory Diet
To supplement anti-inflammatory nutrients while continuing to ingest pro-inflammatory substances is counter-productive. These dietary guidelines help reduce inflammation for most people.
1. Decrease or eliminate red meat and dairy products. Some arthritis patients also seem to react to poultry.
2. Decrease or eliminate refined sugar.
3. Eliminate caffeine (including coffee, black tea, cola drinks, and chocolate).
4. Eliminate any likely food allergens during the initial three or four weeks such as gluten grains, citrus fruit, and night shade vegetables (tomatoes, white potatoes, red and green peppers, eggplant, paprika, and tobacco). These foods can be added back into the diet one at a time (one new food every third day) while carefully observing the effect. Forms are available to make it easier to monitor the effect of these foods.
5. Drink plenty of pure water. Chlorine is an antibiotic and can diminish our friendly gut flora. Studies have associated chlorine in drinking water with increased risk of some types of cancer. It is probably best to drink at least a half hour before the meal and no sooner than a hour after so the digestive juices won't be diluted.
6. Increase your consumption of fresh, raw or lightly steamed fruits and vegetables. Good fruit choices include apples, bananas, grapes, mangoes, papayas, peaches, pears, prunes, kiwis, and other sub-acid fruits. Use discretion if the patient has blood sugar problems although fruit often does not cause a problem if the diet is low fat and high fiber. Good vegetables include asparagus, spinach, zucchini, parsley, artichoke (without the butter), kelp and other sea-veggies, okra, snow peas and many more. Cruciferous vegetables such as cabbage, broccoli, cauliflower as well as onions, chives, and peppers are very nutritious but may create digestive difficulties for some people. The solution is often simply chewing the food better and possibly adding supplemental digestive enzymes such as Metazyme or Beano. Spices such as garlic, tumeric, etc. are also very healthy and should be used regularly if well tolerated.
7. For snacks, consider raw vegetables, fruit, nuts and seeds. The fruits and veggies contain lots of enzymes, bioflavonoids, and other phytochemicals, while the raw nuts and seeds are rich in essential fatty acids, especially flax seed, pumpkin and sunflower seed, walnuts and almonds (almonds can be allergenic to some people). Raw seeds like sesame and flax need to be ground for proper digestion. An electric coffee grinder works well.
These healthy snacks can be combined e.g. raw vegetable sticks dipped in tahini (ground sesame seeds) or almond butter.
These suggestions are very helpful for most people with inflammatory conditions such as sprains, strains, bursitis, tendonitis, arthritis, etc. and can be used in conjunction with supplementation. Most people find that eating this way also often lowers blood lipids, smoothes out blood sugar variations, helps with weight management, reduces digestive problems, increases energy, and more. It is important to note that fats digest more slowly so when fat is reduced in the diet, we may become hungry sooner and be tempted to eat M&M's, corn chips, snack crackers, cookies, etc. This hunger is not a problem if we have prepared plenty of healthy snacks as mentioned above.
http://www.dcdoctor.com/pages/brimhall/p... (need adobe reader)
http://nutrition.about.com/od/dietsforme...
http://www.cidpusa.org/diet.html
http://www.drweil.com/drw/u/QA/QA252779/
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3 books on disease symptoms and treatments
you could also get these books on ebay or amazon or a half price book store. (last two are very similar)..
1.Oxford Handbook of Clinical Medicine
2.Handbook of Diseases (Lippencott)
3.Professional Guide to Diseases (Springhouse) This may not actually be an exact match for SCFE, but it would be a start. Don't know where you are located, but I found one in the UK. It is an online support chat group, so if you are in the US, you'd still be able to join it, being online.
Here is the link:
http://www.patient.co.uk/showdoc/2673889...
I am hoping that someone else out there on Yahoo! Answers, would be able to guide you in the right direction.
Best wishes! |
