Would anyone like to share their experiences about Lupus as it can affect any of us?

Lupus or SLE is an autoimmune disease which affect millions of people around the globe. People have got different approaches when the symptoms flare up. It brings fatigue, pain, rashes or discomfort. Would be good to hear from sufferers

Not only can Lupus cause the more common symptoms mentioned, but it also causes the body to turn on itself. When my wife was diagnosed with Lupus at 23 yrs old, it attacked her kidneys and turned 70% of them to scar tissue. Prednisone was used to treat it and that caused AVN, osteoperosis, osteoarthritis and a whole bunch of other stuff.

Now, at the age of 34, my wife has recently spent 2 weeks in ICU after the Lupus attacked her brain and sent her entire body chemistry out of whack. This condition is referred to as Lupus Cerebritis, or CNS Vasculitis. In her case, due to all of the complications connected to it, is was nearly fatal for her.

As doctors know little about it, when compared to other more common conditions, it makes Lupus more difficult to diagnose and treat. There is still much research and experimentation ongoing relating to Lupus.

Just my 2 cents for you...

the web site at www.uklupus.co.uk has message boards for discussing lupus with other sufferers, as well as more info on lupus
If you live in UK why not join the charity Lupus UK www.lupusuk.com you should be able to find a local group near where you live so you can meet others with lupus Report It

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