Would like to hear from People who have been diagnosed with autoimmune hepatitis.?

Hi would like to know how other people with auto immune hepatitis cope with the everyday symptons. My blood tests are not great and dr told me I am in remission. But still have symptons like tiredness, the shakes and joint pain. Somedays I really find it hard to cope. Every cough cold headache always seems worse than before. Even a little cut takes about a month to heal. Just need to hear from others who are suffering too. It sometimes makes it easier to know my symptons are normal for someone with this disease.

Hi, I have autoimmune hepatitis, and have had it for over 10 years now diagnosed. While I have had my ups and downs with it, it is very possible to lead a reasonable and though a bit restricted life, fulfilling life.

I know first hand, about the fatigue, joints pain, feeling flusih and headaches, but you learn how to cope with the symptoms and work within the limits of the AH.

I have raised 1 child (now an adult), and have another now a teen a teenage girl with Lupus with both these diseases.

You asked if these symptoms are normal with others who have the same diagnosis, well yes in some, and no in others, like me I have many of those symptoms, plus I loose my appatite, my abodmen swells making me look several months pregnant, vomiting, among others.

I go in and out of remmison, and have been off and on medications such as actigal and under dr orders the over the counter supplement milkthistle which cleanses your liver.Last year I had a bad Lupus and autoimmun hepatitis flare that my doctor had to put me on IV cytoxin. Since then, my counts and Hepatitis has gone into a full remmison.

But I do do everything everyone else does, minus drinking. Having this is not the end of our lives so long as we take care of ourselves, do what the doctors tell us, and stay away from very fatty food most of the time (i allow myself treats, though I dont usually have an appatitite). You just have to know that allowing yourself to live, rest when you need it, but not over resting, and even exercsing when you can will help. I have been able to build my immune system up enough that I do not catch every bug that crossed my path. I also heal pretty much at the same rate from a cut as a normal person. So having it, under proper control, having a decent attitude, living as clean of a life as possible has helpped greatly. But falres will happen, just as remmissons.

You may just need to ask your doctor about the proper immune boosting supplements that dont do ectra damage, and possibly other treatments your doctors may not have thought about (actigall), Many dr's are unaware of this one still, because it was first used to aide gallbladder disease, but found to be of aide for those of us with certain Liver disease's.

Good luck,
Chris