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Anyone been diagnosed and treated for acoustic neuroma?


would just like to hear yopur experiences and what your life is like now

Don't know why it is under cancer either - i just put it under health. I have had gamma knife surgery on mine but suffer from tinitus, hearing loss and my balance is bad - look like i'm drunk!

Hi Carol,

I was diagnosed and treated back in October 2003 for a large Acoustic Neuroma. I had retrosigmoid (microsurgery) to remove the tumour. I had facial paralysis immediately after surgery but it has greatly improved since. My balance and fatigue are also complications from surgery. My hearing was gone on the affected about 6 months before diagnosis.

My life today is good, I have returned to work full time ( i returned to school about a year after surgery to pursue a new career) and my life is pretty much back to normal. I have yet to decide whether I will get a device for my single sided deafness. The BAHA was reccommended to me but that means another surgery would be necessary.

p.s. not sure why this is under the "cancer" header; but Acoustic Neuromas are usually benign.

Feel free to ask any questions.

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