Trying to find anyone who has an AVM?

Hi I have what the call an avm where the blood vessels in my brain are coiled up into a ball and not allowing blood to flow.. trying to find anyone who has the same proplem as me. Don't want to go through it alone have the support of family and friends but not the same when they really don't know what you are going through...thanks

sorry no one answered your question. why don't you ask your doctor about support groups, he can direct you to one.

I am an AVM patient.Ppl dun realise wat we go through.Try get doctor advise as chance of rupture is high as time goes.Try for surgical,embolisation or gamma knife
I went for g.k as risk is low(AVM is big),NOW i am under medication & condition is stable.
God bless you!! Report It

Hi. I can help you out with that. Yes, I have an AVM. MY AVM actually ruptured like 9 months ago, and i was rushed to the hospital to undergoe a massive surgery. I was 18 at the time (well, i'm 19 now).

If you need support, i'm all 'ears' :)

You can email me at "Hoticeflames@hotmail.com" Report It

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