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Has anyone suffered from a syrnix, or AVM?


My eleven year old daughter has a syrnix and possible AVM, I am looking from others who suffer from this. She has had many problems due to the syrnix, and not the possible AVM. I am looking for others that have either been through this, or going throug it now. I am hoping to find guidance, support and gain more knowledge and hopefully share what I know as well.

My husband, 24, has got an AVM in the Right parietal lobe of his brain. I am not sure what a syrnix is, or where her AVM may be. He was diagnosed with the AVM almost 2 years ago now, and has undergone 5 embolizations of it, with still more to go. It has been a long, up and down battle, but as of now he is doing great!! If you have any questions, or want to contact me, don't hesitate!-- Email me. sonotech02@yahoo.com
I work in the medical feild and have been researching this for the past 2 years with assistance from many doctors!

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