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Has anyone suffered from a syrnix, or AVM? |
My eleven year old daughter has a syrnix and possible AVM, I am looking from others who suffer from this. She has had many problems due to the syrnix, and not the possible AVM. I am looking for others that have either been through this, or going throug it now. I am hoping to find guidance, support and gain more knowledge and hopefully share what I know as well. My husband, 24, has got an AVM in the Right parietal lobe of his brain. I am not sure what a syrnix is, or where her AVM may be. He was diagnosed with the AVM almost 2 years ago now, and has undergone 5 embolizations of it, with still more to go. It has been a long, up and down battle, but as of now he is doing great!! If you have any questions, or want to contact me, don't hesitate!-- Email me. sonotech02@yahoo.com |
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my husband has an AVM, discovered 2 years ago but never has ruptured... email me and we can talk about it.. I'm actually interested in other people's stories. and what does happen if it ... they can't treat mine, it is a large one in the fron left lobe. If it hemorages that is it for me. To big for the gamma knife too. ...You said you had a MRI, but have you had a MRA? A MRA is done to look at only the blood vessels in whichever area we are scanning. If we are looking for a AVM, they are found in the Circle of Wil... You are asking about Venous Malformations... (I presume) Well...symptoms are in brief..... "The bluish appearance is typical. VMs also tend to be painful, particularly in the morning upon ... Arteriovenous malformations (AVMs) are the leading cause of stroke in young people. Formed during embryonic development, an AVM is a tangle of dilated blood vessels that disrupts normal blood flow ... I'm a gonna say I don't have any experience with that. ...AVMs are tough. Their main problem is that they cause lower GI bleeding. Although the bleeding can appear quite significant, it is usually only about 2-3 unit bleed as compared to a diverticular ... If you are refering to Arteriovenous malformations, they are masses of abnormal blood vessels which grow in the brain. AVM s can occur in any area of the brain, and may be either small or large. Wh... |
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