i recieved a copy of the letter. this woman has wrote a completely different thing on my letter. she is refusing me pain management because i have depression,and children??? what the hell is having children got to do with anything? she has now diagnosed me with something called "chronic pain"? she has written that i told her that my 2 year old was severly autistic,when infact its my 9 year old who is autistic. i told her that my 2 year old has been put on a behviour course,and that if she hasnt improved then she will have to be screened for autism&ADHD. this woman has obviously not been listening to me at all,and has made up her own version. she also says that she cannot offer pain management due to my history of depression??? she has diagnosed me with moderate depression,which is untrue as i have been diagnosed with severe depression and panic attacks by my gp,cpn and psychiatrist.i found some of the questions on the form i had to fill out confusing,and wasnt sure how to answer them. she is saying because of my mental health problems it would be hard to teach me how to manage my so called "chronic pain". she has discharged me,so now dont know what the hell to do. this womans reasons for not wanting to treat me are ridiculous. do i have the right to complain? my own gp is disgusted at the way this woman has treated me as he has been seeing me for over 2 years. it is on my hospital file that i have had MRSA,and it seems everytime i go for treatment i am treated almost like a lepper,even though i have been clear from MRSA for over a year.this letter has upset me so much,as she hasnt even got the basci facts right. i told her only 2 of my children live at home. my eldest is 18 so is not at home. my son lives with his dad,and i have my 2 girls living at home with me and my partner.
i am currently on 60mg of morphine a day,just so that i can stand up and walk,as i have been collapsing with the pain.can anyone advise me what i should do next?genuine answers only please x Hi ,i know exactly what you are going through.
i was diagnosed with fybromyalgia some 8 yrs ago.once they had ruled out arthiritis.Was you seen by a rhumatoligist firstly,as this is the only way to be diagnosed correctly.What they do is whats called a 10 point check.and if you cant manage with certain movements without being in pain,they do a scoring system.
ok well i have 3 kids,or should i say 2 young men and an 11yr old.
I have been on anti depressants for 15 yrs as i had blanked my memory about my childhood since then and when my 2nd son was born this was when my memory came back.so what i am saying is that those medications have nothing to do with it.
I am now on for the fybromyagia ,solpadol,which is only on prescription,and tramadol,but i only have 2 daily of these.
my ankles are now getting sligtly deformed,so i was referred to a podietrist,and i am seeing her every 6 weeks she has given me insoles for my feet,and these will be changed every 6 weeks to become firmer,to straighten the way i stand.
i have been given speacial crutches,so its kinder for my hands.
I have also been referred for pain management but there is a 7 month waiting list for this.
i hope i am helping you in the questions you have asked.
unfortunatly there is no cure for this,and i have had to give up work,i am 42 by the way.what i do find that helps is i need to have a rest every afternoon,40 winks and this helps me to carry on for the remainder of the day.with this condition you are either very lucky where it will disappear of like me ,it gets gradually worse.
my husband helps out alot so i have this which makes me damn grateful on crap days.i wake up every morning feeling as if i have not slept.so ther gp has put me on sleeping tabs.yes i shake with pills but without these i dont know if i would cope.
what i tend to do as not to let it get to me is take 2 painkillers before going for a walk.and swimming is excellant as it is non weight bearing.
if you need more help please write again.
I am now on DLA as this condition has now at last been recognised as a disability in certain cases. seems like you need to change your doctor. You can ask for a copy of the specialists report, that was sent to your doctor, might help I just recently read an article about vitamin D.
The article said that low levels of vitamin D might be the cause of fibromyalgia.
You could try a supplement for a while to see if it helps. Hi Angel,
Just want to say I am thinking of you and hope you finally find some relief for your pain.
I did a search on fibromyalgia clinics in the UK and can see like here in the US that most doctors overlook this terrible condition and in fact do not want to accept it as a genuine medical problem. Now fortunately in the US it is finally being recognized for what it is and treated by more pain specialists.
In the UK I found there are only two clinics that specifically treat fibromyalgia but the word is getting out more now as there are new cases being diagnosed each day.
I am glad that you have the support of your GP who validates your condition and is working with you to find the best treatment available.
The first person I met with fibromyalgia was about 12 years ago. She had 4 young children and so I volunteered to help out once a week with her daily chores. She needed regular help because of constant flare ups and was barely able to cope. This was an active young woman, about your age who enjoyed life to the full until her condition limited her abilities to work. She then continued to operate her employment on a part time basis at home. This lady did not have to work as her husband was quite established in his own company and so her financial needs were met. I know her pain was real and complicated and she told me she had been to specialists for several years to find a diagnosis until she eventually did. The UK is catching on as here, and finally recognizing fibromyalgia for what it is. Bless You, C:) Continued Answer>
20/31My Dr. pushed me 2 wean off the prednisone & sometimes as I weaned off I had to up it again.Many people get stuck on it(Not good in the long run)2) Eventually I weaned enough that again 800mg of Motrin could get me through if it was consistently in my body-
Eventually I weaned that down 220/31Than we felt that I should see how Alieve worked because of the long acting device in it-& how it would do for my pain and inflamation.(I still have 2 take Alieve but now I can get away in non challenging times 2 skip a day,& I am down 2 only 1x a day 鈥渕ostly鈥?
21/31But if it gets out of my system 2 long it is a problem)
note: I can still have pain @ times that shoots through my body because of the Parvo arthritis, but fibro pain is no longer a debilitating factor anymore)KEEP THE FAITH!
My main problem is the chronic fatigue & what goes along with it~constant sore glands in neck & sometime in the groined area~ sore glands get worse@more challenging times.
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At bad bouts of challenging times, I can get muscle weakness, and no energy and definitely, this contributes to depression.
Believe me no one is capable of dealing with long-term pain with out replacing the chemicals that it depletes in the brain.
I also just added in another drug that has been like a light bulb going off to give me energy, encouragement, and to be able to function with the chronic fatigue (rather than laying in bed) or (struggling to stay alert and awake.)
Here is the combination I have found that is working so far.
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1. Alieve (depending on how I feel) 1 or 2 in the morning. Sometimes in more challenging times, I will take 1 pill in the evening.
2. Tylenol Extra Strength (rarely now) as a last resort to pain.
3. Zoloft (an anti depressant) it had to be increased recently ~because of the chronic fatigue affecting the function of my life~
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(very likely winter is more challenging) which again a catch 22 depression/chronic fatigue/depression/chronic fatigue. (Also I now take that before bed because that can make you tired at times)This seems to be working well also.
4. Now I just was given addoral ( the type of medicine used a lot for ADD) (Some people nick name it like a speed up form of drug) 10mg
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I cannot tell you how much this is helping! It was as if a light switch went off for a feeling like back to me.
I still have challenged days (but I don鈥檛 end up lying in bed) 鈥?b I also plan to (when I go back to the doctor in a month) See if it can be increased on more challenging times) I am allowed to take one in the morning and another 6 hours later on a challenging day but~
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so far I鈥檝e been taking 2 a day which seems to work great! It also helps me sleep better at night.
5. Now I did have a biopsy on my leg because of the chronic fatigue and the doctor just ended up telling me something I already did and that was to treat myself to a chocolate bar anytime I wanted ~~for glucose to get to my muscles. The reason for the biopsy has~
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decreased much (muscle weakness) so it is not so imperative to eat a chocolate bar. 鈥淏ut I like them鈥?lol.
6.The other important factor that I never did before in my lifetime and the doctor said he normally would not encourage it but to drink products with caffeine. I never drank coffee before last year but the result of it helping me has been good.
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I thought I could slow that down with the adoral in me but I need both so far.
Hun I hope this info in some way helps you and maybe some other people.
I do wonder about you having to take the morphine and gosh, how that can all by it self create depression. If you can get away from the medicine~ (notice I said if)(****and of course with your doctors advice****)
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you might be a lot better off?
May you be encouraged, keep the faith, look forward to being someone who has the patience, wisdom, and stubborn strength to beat, manage, these trials and tribulations so you have quality in your life鈥?br>
You are in my thoughts and prayers very often.
Pure Love & Light
HOTLIPS
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Ps. In addition to the above 鈥?I have been researching for a vitamin supplement to boost my immune system and I think I discovered one that has had great success. I do know some one that it has good results with the recuperation of Limes Disease,
"which can have similar symptoms to both fibromialgia, and Parvo 19 besides other issues it creates." When and if I find that this supplement is helpful for boosting my immune system I will let you know. I just do not want to say anything until I am sure. Be Encouraged!!!Thank you for indulging me in such a long answer.
phewwww鈥? good luck honey I hope things improve for you. |
